Now that Jared has done the ice bucket challenge I would just like to say a thing about this disease and viral trend.
I’ve heard some criticism about the challenge, about how a lot of people are dumping ice over their heads just for attention even if they don’t really care about the charity. And since the challenge is to either dump ice over your head or donate, these people probably aren’t donating, which is annoying.
But what matters is that these people are still spreading the trend, and as long as these videos continue being made, awareness for ALS is being spread. From what I’ve seen, many celebrities have done the ice bucket challenge for awareness, AND donated, which really means a lot to me.
When I was 12 my uncle died of ALS. When he was first diagnosed, he was given 18 months to live, but managed to live about 3 years. He slowly lost the ability to use his muscles, starting with the muscles used for swallowing and talking, and ending with the muscles used to move his toes. By the end, he was basically just a sack of skin and bones, but remained fully aware of what was happening, and could still feel pain. He was fully aware of how his two teenage sons and 10-year-old daughter were going to lose their father. He had a great relationship with his kids and let me tell you it was absolutely heartbreaking to see him not only wither away from this awful disease but to know his kids were going to lose him. My elderly grandmother became his primary caregiver, along with the help of a part-time nurse. In the end she had to do everything for him, including bathing him, feeding him through a tube, and wiping his ass for him. This was a man in his 50s.
So ya, this fundraiser means a lot to me, even though I generally find internet trends annoying. I’m not sure what dumping a bucket of ice water over your head has to do with anything, but hey, it’s working, and donations to ALS associations have recently spiked.